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Chapter 2 - When a Baby Dies in Pain

from Part I - Starting at the Beginning

Published online by Cambridge University Press:  17 May 2025

Paul J. Ford
Affiliation:
The Cleveland Clinic Foundation, Cleveland
Denise M. Dudzinski
Affiliation:
University of Washington School of Medicine, Seattle
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Summary

In this chapter of Complex Ethics Consultations: Cases that Haunt Us, the authors describe a baby born at 25 weeks gestational age (at a time when survival at that stage was tenuous) to an adolescent mother. The fragile preemie developed necrotizing enterocolitis that was so extensive that definitive surgical resection was impossible. With no definitive treatment and inevitable suffering without it, the recommendation to shift to comfort care was declined and ethics consultants helped to negotiate the conflict.

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Type
Chapter
Information
Complex Ethics Consultations
Cases that Haunt Us
, pp. 21 - 26
Publisher: Cambridge University Press
Print publication year: 2025

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References

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Schroeter, K. Ethics in perioperative practice: Patient advocacy. AORN J, 2002; 75(5): 941–4, 949.Google ScholarPubMed
Lantos, J. When parents request seemingly futile treatment for their children. Mt Sinai J Med, 2006; 73(3): 587.Google ScholarPubMed
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Groudine, SB. The child Jehovah’s Witness patient: A legal and ethical dilemma. Surgery, 1997; 121: 357–8.CrossRefGoogle Scholar
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Annas, GJ. Asking the courts to set the standard of emergency care: The case of Baby K. New Engl J Med, 2006; 330: 1542–5.Google Scholar

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