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Chapter 5 - She Was the Life of the Party

from Part II - The Most Vulnerable of Us

Published online by Cambridge University Press:  17 May 2025

Paul J. Ford
Affiliation:
The Cleveland Clinic Foundation, Cleveland
Denise M. Dudzinski
Affiliation:
University of Washington School of Medicine, Seattle
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Summary

This chapter of Complex Ethics Consultations: Cases that Haunt Us recounts the case of a previously healthy 7-year-old whom the author saw in the emergency department. In the PICU, she was diagnosed with meningococcemia and purpura fulminas. She required ventilation, dialysis, and vasopressors. If she did not recover, she faced double upper extremity amputation, multiple reconstructive surgeries, and uncertain neurological function. Her parents requested withdrawal of life-sustaining treatment, but PICU staff thought this was too soon and inappropriate. They wanted more time, which her parents declined. Her parents relied on a faith tradition that matched the author’s. He reflects on an ethics consultation in which he recommended respecting the parents’ wishes for terminal withdrawal. The author reflects on the child’s frightened face as he reassured her in the ED that she would be fine. She wasn’t. These thoughtful parents, who allowed another day for evaluation, asked what he would do if faced with the same situation and he replied. The child died.

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Chapter
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Complex Ethics Consultations
Cases that Haunt Us
, pp. 47 - 52
Publisher: Cambridge University Press
Print publication year: 2025

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References

Charon, R. Narrative Medicine: Honoring the Stories of Illness. New York: Oxford University Press, 2006.CrossRefGoogle Scholar
Diekema, DS. Parental refusals of medical treatment: The harm principle as threshold for state intervention. Theor Med Bioeth, 2004; 25(4): 243–64.CrossRefGoogle ScholarPubMed

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