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Chapter 26 - Intraoperative Exposure to Sporadic Creutzfeldt–Jakob Disease

To Disclose or Not to Disclose

from Part VII - The Big Picture:

Published online by Cambridge University Press:  17 May 2025

Paul J. Ford
Affiliation:
The Cleveland Clinic Foundation, Cleveland
Denise M. Dudzinski
Affiliation:
University of Washington School of Medicine, Seattle
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Summary

In this chapter of Complex Ethics Consultations: Cases that Haunt Us, the author describes a case wherein surgical instruments were reused after a prion disease case at a time when the protocol would have been to discard them. Given that there are no interventions available for this prion disease questions arose regarding disclosure, in particular when it would be required and who would be in a position to provide that disclosure.

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Type
Chapter
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Complex Ethics Consultations
Cases that Haunt Us
, pp. 207 - 212
Publisher: Cambridge University Press
Print publication year: 2025

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References

Johnson, RT, Gibbs, CJ Jr. Creutzfeldt–Jakob disease and related transmissible spongiform encephalopathies. N Engl J Med, 1998; 339(27): 1998–9.CrossRefGoogle ScholarPubMed
Glatzel, M, Abela, E, Maissen, M, Aguzzi, A. Extraneural pathologic prion protein in sporadic Creutzfeldt–Jakob disease. N Engl J Med, 2003; 349(19): 1812.CrossRefGoogle ScholarPubMed
Belay, ED, Schonberger, LB. The public health impact of prion diseases. Annu Rev Publ Health, 2005; 26: 195.CrossRefGoogle ScholarPubMed
Steinberg, D. Informing a recipient of blood from a donor who developed Creutzfeldt–Jakob disease: The characteristics of information that warrant its disclosure. J Clin Ethics, 2001; 12: 136.CrossRefGoogle ScholarPubMed

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