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Approximately 25% of older adult residents who experience an acute change in health status are transferred from Long-Term Care (LTC) to Emergency Departments (ED). We explored the use of an intervention (i.e., LTC to ED) care and referral pathway, INTERACT® Change in Condition cards, and STOP AND WATCH tool, in informing decision making regarding resident transfers. We conducted 22 semi-structured interviews with Health care Providers (HCPs) involved in the LTC to ED care pathway in Western Canada. Thematic analysis of the qualitative interviews was used to evaluate the use of the pathway and tools. We identified six themes influencing decision making around resident transfers including interprofessional practice and conflict, ambiguous and clear medical cases, ageism, health care providers’ goals, family involvement in resident care, and intervention tools. The intervention may be useful in streamlining, documenting, and increasing transparency in complicated LTC resident care and transfer decisions.
The COVID-19 pandemic highlighted significant vulnerabilities in long-term care (LTC) homes, severely impacting residents and care partners. This study investigates how care partners of older adults living in Ontario LTC homes perceived residents’ experiences during the COVID-19 pandemic, and how those perceptions shaped their own caregiving experiences. Using critical ethnography, we identified four key themes: (a) masks and miscommunication, (b) loneliness and loss, (c) from interaction to isolation, and (d) loss of the advocacy role. Supportive actions included transparent masks, increased allied health professionals, and enriching daily programs. These findings emphasize the need for policies that balance infection control with the emotional and social needs of LTC residents, addressing power imbalances, ageism, and systemic inequities.
We developed a clinical care pathway for the detection and management of frailty for older adults living in long-term care (LTC) homes.
Methods
We utilized a modified Delphi with residents of LTC homes experiencing frailty, their caregivers, and care providers. The pathway was created using existing literature and input from key LTC experts.
Findings
Fifty-two panelists completed round one of the Delphi, and 55.8% of these respondents completed round two. Both rounds had high agreement and ratings. We added six new statements following analysis of round two, and 15 statements were modified/updated to reflect panelist feedback. The final pathway included 28 statements and promotes a resident-centered approach that highlights caregiver involvement and inter-professional teamwork to identify and manage frailty, as well as initiate palliative care earlier.
Conclusion
Implementing this pathway will allow health care providers to adopt screening measures and adapt care to a resident’s frailty severity.
Understanding the process of seeking long-term care (LTC) in old age helps identify what contributes to delays and inequalities in accessing it. Current research highlights the roles of individual and policy factors, but pays little attention to how these factors interact. This qualitative study aims to fill this gap by identifying facilitating factors and mechanisms in the initial approaches to LTC policies. It examines care-seeking in two towns in northern Italy, where a demand-based approach, high fragmentation and poor coordination pose significant challenges. In a bottom-up approach to policy implementation, the experiences and perspectives of both care-seekers and professionals are integrated. Indeed, the data collection (April 2023–May 2024) triangulates 100+ hours of participant observation and semi-structured or vignette-based interviews. The study finds that care-seeking entails three interrelated steps: recognising care needs, being willing to receive LTC, and reaching an entry point. At each stage, three mechanisms operate at intrapersonal and interpersonal levels and can be promoted by LTC policies to facilitate care-seeking, especially for those experiencing barriers. The mechanisms are (1) taking the initiative to raise awareness of care needs and share information about available solutions; (2) fostering trust between professionals and care-seekers, who often rely on confidential relationships to discuss care arrangements; and (3) combining primary information with tailored guidance on the local offer, enabling care-seekers to make informed decisions. The findings provide actionable insights into policies and practices that facilitate care-seeking, and offer a conceptual framework that explains the driving factors behind this process and its mechanisms.
As the population ages, the provision of adult long-term care (LTC) is one of the major challenges facing the UK and other developed nations. LTC funding for the elderly is complex, reflecting the range and level of services provided, with the total cost depending on the duration of LTC required. Institutional care settings (e.g., nursing/residential care homes) represent the most expensive form of LTC. Planning and funding for institutional LTC requires an understanding of the factors affecting the mortality (and hence duration and cost of care) of such LTC recipients. Using data provided by Bupa, one of the largest LTC providers in Britain, this paper investigates factors affecting the mortality of residents of institutional LTC facilities over the period 2016-2019. Consistent with existing research, most residents were female and had a higher average age profile compared with male residents. For those residents who died during the investigation period, the average length of stay was approximately 1.6 times longer for females relative to males. For both males and females, new residents experienced higher mortality in the first-year post admission compared to existing residents. Variations in the mortality of the residents were analysed by condition, funding status and care type on admission.
The federal government does not provide universal social insurance for the risk of needing nonmedical custodial care in old age. A majority of individuals aged sixty-five or older will require long-term care (LTC, also known as long-term services and supports) at some point in their lives. LTC includes assistance with activities of daily living, such as eating, bathing, dressing, getting in and out of a chair or bed, walking, toileting, and continence. This chapter explores the implications – for current and future seniors and their caregivers – of increased longevity and other trends on unpaid LTC and on publicly funded and privately funded paid LTC. In addition to addressing alternative means of accessing and funding LTC, this chapter highlights recent LTC innovations, new developments in the law, and federal LTC reform proposals.
Reforms to the means tests in England for state-financed long-term care were planned for implementation in 2025. They included a lifetime limit (cap) on how much an individual must contribute to their care, with the state meeting subsequent care costs. We present projections of the costs and distributional impacts of these reforms for older people, using two linked simulation models which draw on a wide range of data. We project that by 2038 public spending on long-term care for older people in England would be about 14% higher than without the reforms. While the main direct beneficiaries of the lifetime cap would have been the better off who currently receive no state help with their care costs, the reforms also treated capital assets more generously than the current system, helping people with more modest incomes and wealth. When analysing the impacts of the reforms it is therefore important to consider the whole reform package. Our results depend on a range of assumptions, and the impacts of the reforms would be sensitive to the levels of the cap and other reformed parameters of the means test on implementation.
The aim of the article is to examine the efficiency of Long-Term Care Sector in Poland. Detailed analysis of the level of dependency was carried out, measured by the number, structure and sequence of ADL loss among residents based on data collected between 2021 and 2022 in Polish private rest homes, social residential homes and nursing homes. We have used 3 scenarios based on care and home modernization vouchers to calculate alternative public LTC costs. In the 5 years’ perspective, it seems that solutions based on care vouchers: home care vouchers for 0–2 ADL group without cognitive impairment or mental disorders and inpatient care vouchers for 0–2 ADL group with mentioned impairments, lead to the highest public savings. Better allocation of people with a low level of dependency and without cognitive impairment results in lower public spending on LTC and increased access for people with a higher level of dependency.
Relationship-centred mealtimes can support care home residents, who are at high risk for loneliness. However, care home staff do not consistently promote relationship-centred mealtimes. This secondary analysis examined the impact of factors (selected based on the Theory of Planned Behaviour) upon care home staff interest in making mealtimes more relationship-centred. Data were from a cross-sectional, quantitative survey of 670 care home staff from North America. We used multivariable logistic regression to test hypotheses. The model was statistically significant, and explained 13 per cent of the variance in staff members’ interest in making mealtimes more relationship-centred. Respondents who were more satisfied with current mealtime practices, had used collaborative change strategies in the past, and who perceived organizational support for relationship-centred care were more likely to have interest in making mealtimes more relationship-centred. These are modifiable factors to target in interventions designed to promote care home staff interest in making mealtimes more relationship-centred.
This chapter considers the costs of long-term care for service users and their families, and the policies that are necessary for adequate financial protection. The main focus is on home care services due to the substantial gap in evidence regarding their affordability. Given the widespread preference for home-based care, particularly in Europe where the majority of long-term care users reside at home, understanding the financial implications of these services is crucial. While decisions about home care primarily prioritize users’ wellbeing, financial considerations also shape care arrangements. Overall, common protective mechanisms such as caps on out-of-pocket payments income-based and means tests seem unable to successfully protect long-term care users from experiencing catastrophic spending.
Population ageing coupled with a growing burden of disease and disability will cause long-term care needs to increase considerably around the world. Yet despite changing demographics, many countries do not invest adequately in long-term care systems. This chapter sets out the reasons that long-term care is often underprioritized by governments and begins to consider why countries need a re-think when it comes to the way they care for older adults.
This chapter explores how common challenges facing long-term care systems across the world have given rise to common trends in the development of long-term care service delivery - a focus on improving integration, the shift from residential care to home- and community-based care, the growing role of the private sector in care provision and the emergence of digital technologies with transformative potential. Recent developments in five countries (Germany, Japan, Sweden, Norway, and Romania) are used to exemplify and distil overarching lessons for strengthening long-term care service delivery.
This chapter examines the potential economic impact of investing in long-term care systems. Long-term care systems often indirectly burden informal caregivers, primarily women, leading to a significant loss of potential income and economic growth opportunities. Without adequately compensated, trained care professionals, it’s challenging for unpaid informal caregivers to increase their labour market participation. A comprehensive long-term care system must include support programs and policy changes that encourage both informal and formal caregivers to participate fully in the workforce, which is vital for economic growth and productivity.
This chapter reviews the strategies countries are employing to improve the quality of long-term care for older adults and assesses the impact of these approaches. Given that long-term care is a relatively new component of welfare systems, there is limited evidence on effective quality improvement measures. The scarcity of data on care quality in most countries further complicates the evaluation and comparison of these strategies. Despite these challenges, the chapter provides an overview of various quality improvement approaches, utilizing available evidence to understand their effects on the quality of long-term care.
This chapter examines the challenges in measuring long-term care needs to determine eligibility and the impact of eligibility rules on access to care and wellbeing, focusing on European countries with established long-term care systems. Eligibility rules are crucial for identifying individuals with the greatest need and ensuring equitable resource distribution, yet defining these rules is challenging due to the lack of a universal approach to measuring health and social needs. Consequently, some individuals with functional or cognitive limitations may be inadequately supported or face high out-of-pocket costs, leading to reliance on informal care or unmet needs. This can reduce their independence and increase the risk of costly hospitalizations. The chapter advocates for expanding eligibility rules to improve coverage, equity, and efficiency, highlighting their role in increasing access to care, reducing poverty due to care costs, and enhancing wellbeing.
This chapter concludes by summarizing the evidence presented in the book and considering the way forward by re-visiting the arguments in favour of investing in long-term care and the costs of inaction.
With global population ageing and shifting morbidity and disability patterns, the demand for long-term care is increasing. The chapter highlights the impact of demographic changes, particularly the rise in the older population and the growing need for dementia care, on long-term care demand. It advocates for a paradigm shift from institutionalized nursing homes to home-based care and stresses the need for policy support to enhance informal caregiving and develop a robust long-term care workforce. Additionally, it underscores the significance of recognizing long-term care as a social and human right and establishing a regulatory framework to ensure high-quality care.
The aim of this chapter is to illustrate how a robust long-term care system can positively influence the overall wellbeing of society, extending beyond the individual receiving care. Since the primary recipients of long-term care are often older or disabled individuals, it is sometimes viewed as a costly burden on society rather than an investment in the public interest or the common good. This chapter seeks to challenge such perceptions by emphasizing the positive and proactive social impact of a strong long-term care system on society as a whole. By highlighting these arguments, the chapter aims to provide further justification for countries to invest in their long-term care systems.
This chapter explores methods of financing long-term care. These include public financing, which involves government-managed programs funded through taxation and social insurance schemes, and private financing, which includes out-of-pocket payments and family contributions. The chapter also considers how resources are pooled and allocated, as well as policy decisions regarding public care coverage and financial protection. Short case studies illustrate the practical functioning of different financing models. Finally, the chapter considers the evolution of long-term care expenditure in the context of an ageing population.
This chapter explores the available evidence on how long-term care influences health systems. While the focus is primarily on high-income countries, the issues discussed are relevant to low- and middle-income countries facing rising demands for long-term care as populations age. Overall, the literature suggests a strong long-term care system has many positive consequences for the health sector and for the health and well-being of older people.