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Bridging the ACP literacy gap in Nigeria: A call for community and cross-sector collaboration

Published online by Cambridge University Press:  12 September 2025

Rikas Saputra*
Affiliation:
Department of Islamic Guidance and Counseling, Universitas Islam Negeri Raden Fatah Palembang, Palembang, South Sumatera, Indonesia
Isnaria Rizki Hayati
Affiliation:
Department of Guidance and Counseling, Universitas Riau, Palembang, Indonesia
Neni Noviza
Affiliation:
Department of Islamic Guidance and Counseling, Universitas Islam Negeri Raden Fatah Palembang, Palembang, South Sumatera, Indonesia
Yenni Lidyawati
Affiliation:
Department Indonesian Language and Literature Education, Universitas Sriwijaya, Palembang, South Sumatera, Indonesia
*
Corresponding author: Rikas Saputra; Email: rikassaputra_uin@radenfatah.ac.id
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Abstract

Information

Type
Letter to the Editor
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
Copyright
© The Author(s), 2025. Published by Cambridge University Press.

Dear Editor,

We read with great interest the article by Cadmus et al. (Reference Cadmus, Oyinlola and Obadare2024) titled “Knowledge and perception of older adults toward end of life and advanced directive in Nigeria,” published in Palliative and Supportive Care. This study offers insights into Nigerian older adults’ low awareness and engagement regarding advanced care planning (ACP) and advanced directives. We want to provide reflective comments and suggestions to strengthen the discussion further.

First, the study successfully highlights the significant knowledge gap among older adults in Nigeria regarding end-of-life care, ACP, and legal documents such as living wills and power of attorney. With only about one-fifth of respondents having heard these terms, it is clear that public education and ACP socialization remain highly limited in Nigeria. The study underscores the importance of advocacy and community-based education, particularly through the influential role of religious leaders, who serve as the primary information source for respondents (Saputra et al. Reference Saputra, Ramadhani and Laras2024a). Leveraging community and faith-based approaches is crucial to improving acceptance and understanding of ACP, especially in deeply religious societies like Nigeria.

Second, the article aptly addresses the impact of culture, religion, and family structures on end-of-life decision-making preferences (Saputra et al. Reference Saputra, Ramadhani and Laras2024a). Most Nigerian older adults still rely heavily on family for care decisions, emphasizing collective decision-making and family traditions (Ene et al. Reference Ene, Agwu and Ekoh2022). This phenomenon is common in many other developing countries, including Indonesia, indicating the need for cross-cultural approaches to develop ACP interventions (Pohan et al. Reference Pohan, Atmoko and Ramadhani2024).

Nevertheless, there are areas where the discussion could be strengthened. First, the article should discuss the implications of low ACP literacy on the quality of palliative care and the risk of unwanted medical interventions at the end of life (Jones et al. Reference Jones, Luth and Lin2021). Second, although most respondents prefer home-based care at the end of life, the article does not detail structural or policy barriers that might hinder the realization of these preferences, such as the availability of home care services and financial support (Saputra et al. Reference Saputra, Setyorini and Nuraida2024b). Further qualitative research may be needed to explore these issues in depth.

Furthermore, efforts to enhance ACP should involve multi-sectoral collaboration: healthcare institutions, religious leaders, media, and policymakers must all work together to broaden ACP literacy and access. Educational materials should be adapted to local languages, cultural norms, and spiritual preferences for effective community engagement (Haynes et al. Reference Haynes, Hughes and Okafor2023).

In conclusion, we appreciate this article’s valuable contribution to filling the ACP knowledge gap in low- and middle-income countries. The study also offers important lessons for other countries, including Indonesia, to improve ACP literacy and implementation based on local cultural and spiritual contexts. It is hoped that collective, cross-sectoral efforts and community-focused education will ultimately enhance the quality of end-of-life care for older adults worldwide.

References

Cadmus, EO, Oyinlola, O, Obadare, A, et al. (2024) Knowledge and perception of older adults toward end of life and advanced directive in Nigeria. Palliative and Supportive Care 23 e3. doi:10.1017/S1478951524001615CrossRefGoogle ScholarPubMed
Ene, J, Agwu, P, Ekoh, P, et al. (2022) Is filial care for older adults in Nigeria threatened? Examining concerns from adult offspring providing care. Journal of Aging Studies 63(October), 101078. doi:10.1016/j.jaging.2022.101078CrossRefGoogle ScholarPubMed
Haynes, D, Hughes, KD and Okafor, A (2023) PEARL: A Guide for Developing Community-Engaging and Culturally-Sensitive Education Materials. Journal of Immigrant & Minority Health 25(3), 666673. doi:10.1007/s10903-022-01418-5CrossRefGoogle Scholar
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Saputra, R, Ramadhani, E, Laras, PB, et al. (2024a) Economic burden on families: Analyzing the financial impact of palliative care for cancer patients. Palliative and Supportive Care 22(6), 12.10.1017/S1478951524000671CrossRefGoogle Scholar
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