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Childhood Chronic Illness and the School

Published online by Cambridge University Press:  12 February 2016

Rosalyn H. Shute
Rosalyn H. Shute*
Affiliation:
Flinders University
*
School of Psychology, The Flinders University of South Australia, GPO Box 2100 South Australia 5001
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Abstract

This paper introduces to school personnel some important issues with regard to chronic illness in children and adolescents. Current approaches to understanding the adaptation of young people to chronic illness are introduced, and the present state of knowledge about its psychosocial impact is outlined. Specific effects on education are then discussed, followed by a consideration of the role of school personnel, particularly guidance officers and school counsellors, in ensuring that the needs of students with chronic illnesses are appropriately met.

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Type
Interventions
Information
Journal of Psychologists and Counsellors in Schools , Volume 9 , Issue S1: Health, Well-being and Coping in Young People , August 1999 , pp. 109 - 122
Copyright
Copyright © Cambridge University Press 1999

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References

Achenbach, T.M. & Edelbrock, C. (1991). Manual for the Youth Self-Report Form. Burlington, VT: University of Vermont, Department of Psychiatry.Google Scholar
Bannon, M.J. & Ross, E.M. (1998). Administration of medicines in school: who is responsible? British Medical Journal, 316, 1591–1593.CrossRefGoogle ScholarPubMed
Bartholomew, L.K., Parcel, G.S., Seilheimer, D.K., Czyzewski, D., Spinelli, S.H. & Congdon, B. (1991). Development of a health education program to promote the self-management of cystic fibrosis. Health Education Quarterly, 18 (4), 429–443.CrossRefGoogle ScholarPubMed
Bennett, D. (1994). Depression among children with chronic medical problems: A meta-analysis. Journal of Pediatric Psychology, 19 (2), 149–169.CrossRefGoogle ScholarPubMed
Bibace, R. & Walsh, N.E. (1980). Development of children's concepts of illness. Pediatrics, 66, 912–917.CrossRefGoogle ScholarPubMed
Cayler, G.C., Lynn, D.B. & Stein, E.M. (1973). Effects of cardiac ‘nondisease’ on on intellectual and perceptual-motor development. British Heart Journal, 35, 543–547.CrossRefGoogle ScholarPubMed
Cousens, P., Waters, B., Said, J. & Stevens, M. (1988). Cognitive effects of cranial irradiation in leukaemia: A survey and meta-analysis. Journal of Child Psychology and Psychiatry and Allied Disciplines, 29 (6), 839–852.CrossRefGoogle ScholarPubMed
Cox, J.E.J. (1994). Self-care in the classroom for children with chronic illness: A case study of a student with cystic fibrosis. Elementary School Guidance and Counseling, 29,121–128.Google Scholar
Crockett, A.J., Ruffin, R.E., Schembri, D.A. & Alpers, J.H. (1986). The prevalence rate of respiratory symptoms in school children for two South Australian rural communities. Australian and New Zealand Journal of Medicine, 16,653–657.CrossRefGoogle ScholarPubMed
Desguin, B.W., Holt, I.J. & McCarthy, S.M. (1994). Comprehensive care of the child with a chronic condition. Part 1. Understanding chronic conditions in childhood. Current Problems in Pediatrics, July, 199–218.Google Scholar
Fowler, M.G., Johnson, M.P. & Atkinson, S.S. (1985). School achievement and absence in children with chronic health conditions. Journal of Pediatrics, 106, 683–687.CrossRefGoogle ScholarPubMed
Graetz, B.W. & Shute, R.H. (1995). Assessment of peer relationships in children with asthma. Journal of Pediatric Psychology, 20 (2), 205–216.CrossRefGoogle ScholarPubMed
Graetz, B.W., Shute, R.H. & Sawyer, M.G.An Australian study of adolescents with cystic fibrosis: Perceived supportive and nonsupportive behaviors from families and friends and psychological adjustment. Journal of Adolescent Health (in press).Google Scholar
Hanson, C.L. (1992). Developing systemic models of adaptation of youth with diabetes. In: La Greca, A.M., Siegel, L.J., Wallander, J.L. & Walker, C.E. (Eds.), Stress and Coping in Child Health. New York: Guilford Press.Google Scholar
Henning, J. & Fritz, G.K. (1983). School re-entry in childhood cancer. Psychosomatics, 24, 261–269.CrossRefGoogle Scholar
Hurtig, A.L. & White, L.S. (1986). Psychosocial adjustment in children and adolescents with sickle cell disease. Journal of Pediatric Psychology, 11, 241–247.CrossRefGoogle ScholarPubMed
La Greca, A.M. (1990). Social consequences of pediatric conditions: Fertile areas for future investigations and interventions? Journal of Pediatric Psychology, 15,285–307.CrossRefGoogle Scholar
La Greca, A.M., Auslander, W.F., Greco, P., Spetter, D., Fisher, E.B. & Santiago, J. V. (1995). I get by with a little help from my friends: Adolescents' support for diabetes care. Journal of Pediatric Psychology, 20 (4), 449–476.CrossRefGoogle ScholarPubMed
Lavigne, J.V. & Faier-Routman, J. (1993). Correlates of psychological adjustment to pediatric physical disorders: A meta-analytic review and comparison with existing models. Journal of Developmental and Behavioral Pediatrics, 14,117–123.CrossRefGoogle ScholarPubMed
Magrab, P.R. & Calcagno, P. (1978). Psychological impact of chronic pediatric conditions. In Magrab, P.R. (ed.), Psychological Management of Pediatric Problems, (pp. 3–14). Baltimore: University Park Press.Google Scholar
Marteau, T.M., Bloch, S. & Baum, J.D. (1987). Family life and diabetic control. Journal of Child Psychology and Psychiatry, 28 (6), 823–833.CrossRefGoogle ScholarPubMed
McAnarney, E., Pless, L.B., Satterwhite, B. & Friedman, S. (1974). Psychological problems of children with chronic juvenile arthritis. Pediatrics, 53, 523–528.CrossRefGoogle ScholarPubMed
Morris, R.D., Krawiecki, N.S., Wright, J.A. & Walter, L.W. (1993). Neuropsycho-logical, academic and adaptive functioning in children who survive in-hospital cardiac arrest and resuscitation. Journal of Learning Disabilities. 26 (1), 46–51.CrossRefGoogle Scholar
Noll, R.B., LeRoy, S., Bukowski, W., Rogosch, F.A. & Kulkarni, R. (1991). Peer relationships and adjustment in children with cancer. Journal of Pediatric Psychology, 16, 307–326.CrossRefGoogle ScholarPubMed
Owens, L.D. (1996). Sticks and stones and sugar and spice: Girls' and boys' aggression in schools. Australian Journal of Guidance and Counselling, 6, 45–55.Google Scholar
Owens, L.D., Shute, R.H. & Slee, P.“Guess what I just heard…” Indirect aggression amongst teenage girls. Aggressive Behavior (in press).Google Scholar
Rovet, J.F., Ehrlich, R.M., Czuchta, D. & Akler, M. (1993). Psychoeducational characteristics of children and adolescents with insulin-dependent diabetes mellitus. Journal of Learning Disabilities, 26 (1), 7–22.CrossRefGoogle ScholarPubMed
Sexon, S.B. & Madan-Swain, A. (1993). School reentry for the child with chronic illness. Journal of learning Disabilities, 26 (2), 115–125.CrossRefGoogle Scholar
Sexon, S.B. & Madan-Swain, A. (1995). The chronically ill child in the school. School Psychology Quarterly, 10 (4), 359–368.CrossRefGoogle Scholar
Shute, R.H. (1994). Peer support in chronic childhood illness. Proceedings of Children's Peer Relations Conference, Adelaide. Adelaide: Institute of Social Research, University of South Australia.Google Scholar
Shute, R.H. (1998). Peer relationships of children with chronic illnesses. In Slee, P. & Rigby, K.Children's Peer Relations. London: Routledge.Google Scholar
Shute, R.H.& Paton., D. (1990). Childhood illness - The child as helper. In Foot, H.C., Morgan, M.J. & Shute, R.H. (Eds), Children Helping Children, pp. 327–371. Chichester: WileyGoogle Scholar
Shute, R.H. & Paton, D. (1992). Understanding chronic childhood illness: Towards an integrative approach. The Psychologist: Bulletin of the British Psychological Society, 5, 390–394.Google Scholar
Shute, R. & Williamson, P. (1997). Social support networks of young people with diabetes. Abstracts of 10th Australasian Human Development Conference, Australian Journal of Psychology Supplement, 49, 73.Google Scholar
Spirito, A., Stark, L.J., Gil, K.M. & Tye, V.L. (1995). Coping with everyday and disease-related stressors by chronically ill children and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, 34 (3), 283–290.CrossRefGoogle ScholarPubMed
Spratt, E. & Hewson, D. (1996). School experience of adolescents with chronic fatigue syndrome. Australian Journal of Guidance and Counselling, 6 (1), 73–85.CrossRefGoogle Scholar
Suess, W. & Chai, H. (1981). Neuropsychological correlates of asthma: Brain damage or drug effects. Journal of Consulting and Clinical Psychology, 49, 135–136.CrossRefGoogle ScholarPubMed
Wallander, J.L., Varni, J.W., Babani, L.V., Banis, H.T. & Wilcox, K.T. (1989). Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children. Journal of Pediatric Psychology, 14,157–173.CrossRefGoogle ScholarPubMed
Walsh, C. (1998). Peer relationships of adolescents with chronic illness: School absenteeism, loneliness and perceived peer aggression. Unpublished Master of Psychology (Clinical) thesis. School of Psychology, Flinders University, South Australia.Google Scholar